July 29, 2014

Tuesday

Quiet weekend. Mr. DW is out of town so every day, Sharky checks on his house and boat for him. I stayed at home and was just quiet. Watching the reboot of Battlestar Gallactica.

I think I might have solved the rx issue and made some calls yesterday about it. I'll find out if it works this afternoon. *fingers crossed*

Petunia went out with her new boyfriend, LN, Friday night and then last night. His mom picked her up and they went to a mutual friend's birthday celebration - ate at Zaxby's and saw a movie. She had a good time but is pretty tired right now. His mom seems nice.

Woke up in the middle of last night and came out to use the inhaler, and freaked for a brief moment because I thought I saw Gabby sleeping on the couch in her old spot. I miss that stinky old dog so much.

Haven't heard much from the boys. They're busy with their own lives. *sigh*

July 25, 2014

Insurance (Friday)

I am physically ill right now. I think I'm going to vomit.

I have Medicaid right now and it will be cancelled on July 31. Petunia's can be continued, but for $150 a month. Sharky was able to get it just for himself super cheap at work (to upgrade it to family would be an extra 250 added on to his, wtf).

Sunday, I went on the Healthcare.org site and applied. Created a profile (first step) and was told they could not verify me and I had to call Experian for verification, so I did. First woman told me the system was down and to call back. Waited an hour and then I did. I was told they could not verify my identity and had to call the Healthcare.org website. There, I was told I had to mail in my birth certificate. I hung up (nicely) and was frustrated. Waited a bit and called Experian back. This time, a nice woman explained to me that verification was done via credit score, and I did not have one (being a housewife, etc.). *sigh* So, I called back the HC.O site and this time, another nicer woman said I didn't have to mail it if I had access to a scanner. So, we scanned my driver's license and sent it in.Waited all week, checking in daily, no word. Still being verified.

Called back this morning and talked to another woman who said she'd walk me through the insurance part and let me know what was available. So confusing, but I took copious notes and after the call, looked stuff up on line. According to Florida Law, I had to have insurance that included child dental due to Petunia still living at home. So that narrowed down my choices. (There is an option to add on additional, but I really wanted an all-in-one for ease.) After hours, yes hours, of comparison I finally chose one.

So, long story short (too late), Petunia and I now have affordable, decent insurance. Only one problem - it doesn't start until September 1st. I don't know what to do when I run out of insulin in August. I take 2 different kinds, and they average $250 each. I guess I'll call the Diabetes clinic at the hospital and see if there is something they can help me with when that time comes around?

July 23, 2014

Wednesday

Well, had a doctor visit last Friday and I guess everything was ok. He looked at my charts and said my blood pressure was looking good and my glucose was ok and could use improvement. The primary reason was for lab work so I had a lot of blood drawn and gave a urine sample. Hopefully I'll hear from them soon with the results. Next appointment is in 2 weeks. I may or may not have insurance so I may or may not go. *sigh*

Still working on getting insurance because mine expires at the end of this month. Encountered a snafu - when applying, they needed to verify my identity but could not because they used a credit score company to do so - and I have no credit score. Had to scan in my driver's license and submit it to the site and am still waiting to hear from them. I check daily.

July 17, 2014

Thursday

Typical Florida summer, storms daily. On Tuesday evening, the power went out for about an hour and a half. We weren't suffering, just kept still and cool and didn't open the fridge/freezer at all. When the power was restored, we were told that it was an underground line that had fried. Not surprised, because all of the above ground wiring in the neighborhood has been replaced in the past few years, leading to us rarely ever having power issues anymore.

Breathing has become more difficult in the past few days, no where near as bad as it was, but enough that it is noticeable. I've been rather lethargic for the past few days as well. Going to bring that up to the doc on Monday.

When I got out of the hospital last week, I dropped an email off to my dad. Of course, he's inundated me with "insulin kills" emails. Just freaking lovely. I delete them without reading. My mom told my sister, who called twice but I ignored them. She dropped me an email, which I did respond telling her thank you for all the advice, I was taught it all at hospital, and I'm not answering the phone right now trying to avoid stress. Both  my father and my sister are big stress triggers so avoidance is best. My mother is a big one as well, but I cannot avoid her like I can them. I just keep it light and short when she calls and try not to get worked up.

On the good news front, my blood pressure is slowly getting down - I haven't had a reading in the red in a few days. My glucose levels are slowly lowering as well.

July 15, 2014

Tuesday

Went to the doctor's appointment on Friday. Was hesitant at first (it was very sterile, clinical and bilingual) but felt at ease soon. Everyone was nice and I really liked the two doctors I saw. I go back next week for a check up. They were able to work out my insulin issues (sliding scale). Went to Publix afterward, and they had insulin back in supply and I was able to get my prescriptions filled, including an inhaler. It was so stressful to grocery shop though and I didn't do too good of a job.

Saturday, Sunday and Monday were very quiet. It's difficult getting back into the swing of things. Taking medicine on time, testing and recording everything that I do. *sigh*

I'm not as jittery as I was, but still am jittery enough to be very bothered by it. My glucose levels and blood pressure are up and down, all over the scale and do not make any sense to me.

July 10, 2014

Home Sweet Home (Thursday)

Doctor's appointment is scheduled for tomorrow. Trying to get everything organized so I can just hand over clear, concise information.

I don't have a sliding scale for my insulin (even though I asked for one), so I'm sticking to the regular 5 unit dosage before each meal and the 20 unit of the one in the evening. I'm telling the doc and seeing what he says.

Trying to chart my meals, using some free apps on the phone. Hopefully it will help. Trying to chart the stuff in the past by hand was very stressful.

Petunia is some help. She's a bit overwhelmed. She spent the past week at BB's house so hasn't done any chores (like dishes or catbox).

My breathing (original problem) is still kinda labored at times, bringing that up to the doc as well. I use a lot of meditative breathing to help prevent hyperventilating. Need to talk to doc about that as well. I thought they'd prescribe an inhaler, but they didn't. If he does, I believe it will help a lot.

July 9, 2014

Hospital Stay (Wednesday)

The nurse had a hard time getting blood out of me early this morning so she had a lab tech brought up to help. Inside of wrist, very painful, but they for it done. Sigh. Had a blood sugar result of 140, lowest since I came in. That's a good thing. My blood pressure was back up, and that's a bad thing.
Basically have the hang of injecting insulin. It's rather simple and painless. More concerned with being able to afford it right now. Trying not to stress because that makes the bp rise and I'm trying to stay calm and healthy.

Just saw the doc and it looks like I'll be coming home today. Fingers crossed. Waiting on case manager to talk to about insurance etc. 

***

What a freaking nightmare. *sigh* Saw the case manager and she gave me a list of things I need to gather to apply for help with the bill. She was nice and was able to get me a blood glucose meter. Then, of course, no strips so she was able to get the doctor to write a rx for them.

A lot of hurry up and waiting, but finally was discharged at 3 o'clock. Sharky picked me up and we went to Publix - which, of course, did not have any insulin in stock. I was able to get 2 scripts filled and we did a bit of grocery shopping. Came home, unloaded, and went back out to Volde-mart which did have insulin. Had to wait around for it, but got everything filled and came home. Sharky went to get Petunia.

I went through all my stuff to discover that I did not have syringes. Called the Volde-mart pharmacy and was told the doctor had to write a Rx for that. WHAT? Why on earth would they give medicine with no way of administering that? Cried. Then called the hospital and the nurse who took care of me said she'd help. Eventually, got a call that she had a Rx but it had to be picked up. Sharky and Petunia ran to get it and since it was after 9 pm, went to the 24 hour Walgreens next to the hospital. Asshats there treated them like drug addicts. Phuckers.

Since I missed my dinner dose of Novolog insulin, I just took the Lantus at bedtime.

July 8, 2014

Hospital Stay (Tuesday)

IJuly 8th. Finally heard from the doctor. Not being released today. Shortness of breath caused by high blood pressure. Blood sugar levels thru the roof, can't be blamed on the steroids, according to my A1c levels. So doc scheduled a diabetes educator to teach me how to give myself insulin shots. I am very depressed about this.
Sharky freaked out but calmed down fast and said we'll deal with it. He's handling the family phone calls for me.
Roomie #2 had her significant other visit at lunch and he brought garlic crabs for her to eat. Then he sat there and kissed her and rubbed her back for hours. It was really gross. Thank goodness I could pull the curtain. He also used the bathroom. Yuck.
The hospital dietician gave me info. Real basic but helps. Unfortunately all the food is very expensive. Fresh fruits and veggies and high quality meats. Sigh.
Bedtime update: Didn't get to see the diabetes educator because they are back logged. Will see in morning. Sharky visited a bit but left early because he was so exhausted.
Night nurse used to be a pharmacist assistant and told me I have to bring up insurance to the doc because insulin is very expensive. She's also orders a case manager to talk to me tomorrow about funding.

July 7, 2014

Hospital stay (Friday - Monday)

I'm so exhausted. Had trouble breathing last Thursday & Friday and by that last night I couldn't breathe at all. It was a painful frightening struggle. Ended up in the ER at Shands downtown at 10:30 pm on the 4th. The triage people were nice but they didn't realize the severity of it until they put me into another section called FLEX. I was in there a bit until a nurse came in and saw me struggling and then ran for help and came back with 6 or 7 people. They tried to stabilize me with something called a bpac (?) mask but I had a panic attack so they slapped a regular breathing mask on me and ran me to the next stage unit called RESUS.
Once again, I was the center of attention with what looked like 15 people crammed into the curtained off area trying to help. I couldn't calm down, I couldn't breathe, and then when a woman doctor threatened me with intubation I almost fainted. Thank goodness a respiratory therapist with a good, kind head on his shoulders took over and talked me down and got me to allow then to put the bpac mask back on - this time on very low instead of full blast. That was the key and it worked. I was still freaked but was able to handle it.
Was admitted to a room around 8 or 9 am. Missed breakfast, so by the time lunch came around, it had been 18 hours since I had eaten. Was eventually all taken care of and was put on a regiment of heart monitor, insulin, anti blood clot, Albuterol, and other stuff.
Doc ordered a respiratory test and an echo cardiogram but found out I'd have to stay in hospital until Monday to get them done.
Petunia was at a friend's house until Saturday night then came home and visited me with Sharky. Visited Sunday as well. Sunday night, Sharky to get to BB's house to spend the night. Near got home from Savannah on Monday morning.
Got the respiratory test done early Monday morning but the echo was not done until Monday afternoon, so another night here. Sharky and the kids visited that night and I was able to see Bear before he left early Tuesday morning. That hurt.
I had a roommate from Saturday to Monday afternoon. She was 75 and married with a ton of family and most likely is undiagnosed bipolar. Woke up really Sunday morning to find she had stripped herself naked and was dancing around the room. She would swear at the nurses and say horrid things to them. She lied to the nurses and doctors too. Hey family was worse though. One was a homophobe and bitched about me watching The Chew. Another couple purposely started fight between roommate and her husband and laughed about it. And the men used our bathroom. Gross.

July 3, 2014

Sunday June 29 - Friday July 4

On Sunday, Bug & TBoo spent the day with her family and we just hung around at home.

Monday, all of us loaded up in Bug's car and drove down to Zephyrhills to see my mom. It was a tough drive, but we made it ok. Stopped at a Publix first and grabbed food and drink (frozen pizza, chips & dip, cupcakes). Had a really nice time visiting and my parents were glad to see us. My breathing was ok for most of the trip. I did help out and drive a good portion of the way home so TBoo could sit in the front seat. Bug kept clamouring for fireworks. That was nutty.

Tuesday, Bear and Bug went to the DMV and found out that Bear did need an appointment. They made one and went back the next day and Bear finally got his driver's license.

Tuesday night, we went over to Mr. W's house and had him take a picture of the whole family together. Took 25 tries, but got a good one and at least one funny one.

Wednesday, Bear spent the night over his friend Matt's house at a party and then came home Thursday morning just to be picked up by another friend and taken to Savannah to stay for a few days.

Thursday, Bug and Sharky went around and found that fridges are expensive. Bought a used one and brought it home.

Friday morning, Bug & TBoo came over to pick up Daisy-dog and then left. They texted us when they got home. Petunia was picked up by MG's parents and she spent the night there.